Support and Advice
Our support groups are run by people who have first hand, lived experience of living with CTE and/or living with mental health problems. The aim of our support groups is to provide safe, confidential, and nonjudgmental spaces to connect with others that know exactly how it feels to be living life with CTE and other neurodegenerative diseases. Many members have told us that it is a massive relief to know they are not alone and how helpful it has been to connect with others who understand what they are going through. So, get in touch if you would like more information or would like to join one of our support groups....
TOGETHER WERE STRONGER!
Resources
At Marshalling CTE were passionate in providing people with the information and tools to navigate life with a neurodegenerative disease caused by a brain injury.
By sharing Medical and scientific knowledge we give you the power to make informed choices in your mental and physical health.
Our Facebook Support Group
Our Facebook group is for anyone in the UK who has CTE, or any other neurodegenerative disease caused by a brain injury and for the many carers, loved ones, friends or family of someone with the diagnosis. We also welcome members with a medical background or interest in sports related CTE, TBI or early on set dementia.
Admiral Nurse
Admiral Nurses are specialist dementia nurses who provide free, expert advice, support and understanding to help families care for their loved one. Rich & Jen speak regularly with their Admiral Nurse, their Nurse Joe has been a lifeline for them, providing much needed support and advice throughout their CTE diagnosis journey.
Benefits Advice
There are some financial benefits you may be entitled to apply for if you have dementia and/or CTE. There is a free and simple to use, government approved benefits calculator which can be found HERE.
- PIP -Personal Independence Payment is a benefit that helps with the extra costs of having a long-term health condition or disability if you are aged 16 to state pension age. PIP is not awarded based on your condition; it is based on how your condition effects your ability to carry out everyday tasks and your mobility. Information on how to apply for PIP with a neurological condition can be found HERE.
- Universal Credit (UC) - UC is a benefit for people who are on a low income or unable to work due to a health condition, it has recently replaced 6 older means tested benefits such as ESA (employment support allowance). You can apply online, and you will need to provide "fit notes" from your GP until they make an assessment on your ability to carry out any work-based activities. Information on how to apply for UC with a neurological condition can be found HERE.
- Blue Badge Scheme - Blue Badges help people with disabilities or health conditions park closer to their destination. Some benefits such as PIP automatically allows you to apply for a blue badge. The badge costs £10 in England, £20 in Scotland and is free in Wales. To check your eligibility and apply click HERE.
- Attendance Allowance - Attendance Allowance helps with extra costs if you have a disability or health condition severe enough that you need someone to help look after you and you are of state pension age or older. Information on eligibility and how to apply can be found HERE.
- Industrial Injuries Disablement Benefit - You might get Industrial Injuries Disablement Benefit (IIDB) if you became ill or are disabled because of an accident or disease caused by your work on an approved employment training. Information on eligibility and how to apply can be found HERE.
- Help with NHS prescriptions and health costs - Dependant on your financial situation and benefits you are in receipt for you might be able to get free NHS prescriptions, dental treatment, eye tests and help with other NHS costs. Information on your eligibility can be found HERE.
Benefits Available if you are in Receipt of a Qualifying Disability Benefit
There are some financial benefits you may be entitled to apply for if you are in receipt of a disability benefit. There is a free and simple to use, government approved benefits calculator which can be found HERE.
- VAT relief for disabled people - If you are disabled or have a long-term illness, you will not be charged VAT on products designed or adapted for your own personal or domestic use. Information can be found HERE.
- Carers Allowance - If you care for someone for 35hrs or more a week and they are claiming a qualifying benefit such as pip then you may be entitled to claim carers allowance. Information on eligibility and how to apply can be found HERE. It should be noted that if you are in receipt of council house reduction you may lose this reduction if someone claims carers allowance for caring for you!
- Council Tax Reduction - You might be able to apply for a Council Tax discount or exemption if you or someone you live with is disabled. Information on eligibility and how to apply can be found HERE.
- The Motability Scheme - If you are in receipt of qualifying disability benefits such as enhanced rate of the mobility component of PIP then you can apply for the Motability scheme which allows you to lease a car, powered wheelchair or scooter. Information on eligibility and how to apply can be found HERE.
- Vehicle Tax Reduction - If you are in receipt of a disability benefit you may be eligible to either a 50% or 100% discount on your vehicle tax, Information on eligibility how to apply can be found HERE.
- Disabled Persons Railcard - If you are in receipt of a qualifying disability benefit you can apply for a disabled persons railcard. Information on eligibility and how to purchase can be found HERE.
- Disabled Facilities Grants -You could get a grant from your council if you are disabled and need to make changes to your home. More information can be found HERE.
- Disabled person’s bus pass - You may be eligible to a free or discounted bus pass if you are in receipt of a disability benefit, see HERE for more information and how to apply.
Are you experiencing a mental health crisis?
There is help for you!
Shout: For 24/7 text support, text SHOUT to 85258 or click HERE
NHS 111 Online or Phone: If it's not an emergency but you need urgent help with your mental health, you can access NHS 111 online or by calling 111
Samaritans: Call 116 123 to talk , or email: jo@samaritans.org for a reply within 24 hours or click HERE
CALM - 0800 585 858 or click HERE
Mind - 0300 1233 393 or click HERE
No Panic - 0844 9674 848 or click HERE
National Domestic Abuse - 0808 2000 247 or click HERE